Thursday, May 22, 2008

Help! Star needs blood transfusion!

Hi everyone!

Anyone who knows anybody working with Bayer or any pharmaceutical company that sells blood by-products? Or where we can buy blood factors Koate or Alphante?

Koate and Alphanate are anti-hemophelic concentrates that can help regulate the clotting factor.

Our 9-year-old daughter Star needs to have blood transfusion ASAP to stop her frequent nosebleeding. As I have shared in my past posts (here and here), Star has a bleeding disorder called Von Willebrand Disease. It's a genetic bleeding disorder where the platelets are either defective or not functioning well.

Lately, Star has been nosebleeing more frequently again, and unlike in the past, there are now big blood clots. This afternoon, there were about four of those.

Thankfully, results of her CBC and platelet count today are good. No anemia. Platelet is high which means her "good soldiers" are fighting. But her bleeding has to be addressed, otherwise, it will lead to more complications. However, Koate or Alphante are not available in the Philippines. But in case you know of anyone in the pharmaceutical companies, they might know how we can buy them.

Both of these products may be available in Hongkong or Singapore. For those with kind-hearted friends or relatives in those areas, can we ask for assistance in finding out how much this costs and if they are willing to facilitate our purchase of the products?

Please PM me or email me at

Thanks a lot and God bless!

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