Sunday, October 15, 2006

About Star

Few weeks ago, I wrote about my daughter Star's nosebleeding episode. It's been over a month now that she's nosebleeding almost daily, sometimes up to three times a day. At the time I wrote that entry, we were still waiting for the results of her bloodtests. When we finally got the results, the hematologist said there was nothing to worry about. While a bit anemic, her blood seemed to be okey. What a relief!

But our relief, it turned out was shortlived. When the bleeding continued, we decided to seek another opinion. We felt that even though the ENT and the first hematologist both said there was nothing to worry about, daily episodes of bleeding for a month by now is not normal. Star's pediatrician also thought so and so she asked us to see another hematologist -- Dr. Mary Chua, the founder of the Hemophilia Association of the Philippines.

Earlier on, as I mentioned, I already had apprehensions about the nosebleeding. My mother died of profuse bleeding while undergoing operation for mayoma, an otherwise common condition. We were told she had infantile genes that made it difficult to stop her bleeding. She died on the operating table. She was 51 at the time of her death, leaving us all six siblings in our teens and early 20s motherless.

My eldest sister had profuse bleeding during her first childbirth and almost died. My other older sister has very heavy menstrual bleeding since adolescence. Our uncle (my mother's brother) almost died of bleeding while undergoing tonsilectomy. In my father's side, one of my nephews (by my first cousin) has hemophilia. This bleeding problem in our family, I now figured out, could also explain why all my three kids were born prematurely.

All these factors, it turned out, make Star a candidate for von Willebrand disease. While a common kind of blood disorder with about the same prevalence as hemophilia, it occurs to only about 1% to 3% of the population. Most of the time, it is hereditary. Unfortunately, were told, there is no hospital or medical facility yet in the country capable of detecting this. The doctor advised us to bring Star to Hongkong or Singapore so she can be properly diagnosed and given the right intervention.

In our bible study group, I shared with my cellmates what I always tell God when I encounter difficulties. After I pray, I say, "God, it's not my problem anymore. It's Your problem now." Then, I sit back and just wait upon Him.

And truly, when we wait in confidence for Him to work things out for us, we will be amazed by what He does.

I really don't know why we are going through this now. But one thing is for sure, all things work together for the good of those who love God, who are called according to His purpose.

Upon the suggestion of a friend, we started an email brigade for Star, urging help of any form -- foremost for prayers, then referrals, spare dollars, etc. For instance, we learned that Mabuhay Miles can be given away. Or for those who have a spare dollar or, they can probably send it. We are just so overwhelmed with the response. Love, prayers and help have been pouring in since the first hour that I sent the email, even from people we don't personally know. Friends of friends (who got forwarded emails from friends) texted and emailed to ask how they could send help for Star. God is truly amazing! May God bless them a thousandfold.

1 comment:

  1. Hi Tring,
    I'm really sorry that it took me a while before I finally opened the e-mail you sent to me. So sorry about Star. I'm so busy nowadays I'm trapped in this vicious schizophrenia called career woman/mother/wife. I'd like to help but it would be in a form of cash. It wouldn't be much but It's the least I could do. I'm free tomorrow so i'll write you an email for more info, OK!?